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Showing posts from January, 2018

Living a life "Snowed In"

I said I was going to post every day but I've been so extremely sick, its truly a miracle that I wasn't admitted to the hospital. While fighting multiple illness' this week our area was hit with a huge snow storm.  Having Iv treatments, the flu, side effects on top of all the neuro muscle diseases and other autoimmune diseases, while not being able to leave the bed, and trying to figure out how to take care of your kids. This is how life is with chronic illness battles, you are already fighting everyday then bam, hit with another thing so huge it rocks your world. Being a chronic illness warrior is truly living in a constant state of being "snowed in" to your home. It dawned on me this week as I perused social media how 99.9% of people don't live like this every day. I forget sometimes that life is so free for most people. They can go out when they want, go where they want. They don't have to worry about energy, or a ride, or worry about forgetting where ...

A New year ahead, lets not take one day for granted

The key to life is not changing for someone to like you, or for God to love you, instead it is changing because God loves . He transforms us from the inside and out. I sit in the hospital infusion center for the 150th something all day long infusion of medication. Yes, over 150 Iv infusions in just the past few years, not including surgeries, hospitalizations, IV antibiotics, fluids, or blood.  I have a nurse I've never had and I'm way past the time I start normally. They are short staffed so I will be here waiting for longer periods of time for her to come reconnect me to new drugs and give me IV push of benadryl every 2 hours to make sure I don't have any more allergic reactions. I ll get 8mg of Zofran every 4 hours to help control nausea. I also get Tylenol and migraine meds to control the debilitating migraines I get from the medication coursing through my veins for days. I still get lots of side effects, from this life saving treatment but the medications help to les...